It has been a while since I have given an update on my rare condition called Fibrosing Mediastinitis.
I continue to be under local doctors care and visit Cleveland Clinic every 3 months for follow-up. I'm still on oxygen and some days I need it more than other days. Next Friday, February 28th, is National Rare Disease Day. I hadn't realized the number of people dealing with my condition until I had found groups on Facebook. I have added links below if anyone is interested in learning about it.
https://rarediseases.org/rare-diseases/fibrosing-mediastinitis/
Dawnyellsmind.com
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